Dealing with Lyme Disease can be challenging enough based on the complex symptoms alone.
What makes it ten times more challenging, though, is the fact that (for most with Lyme Disease) our symptoms are invisible.
We try to describe what we’re going through, but the words get lost in translation as the hearer sees us as normal, healthy individuals.
How can we be understood? To our friends, the medical community, our own families?
If I were to describe to a healthy person what a day in my shoes feels like, this is along the lines of what I might say.
If you are healthy, and truly want to understand what Lyme Disease is like, I ask you to read the below when you have enough time to let the words register. Really try to enter this world for a moment.
Please know that none of these examples are exaggerations.
This is a picture into life with chronic Lyme disease.
I don’t even know what you said in full, the wind disrupted the sound waves as your words were on their way from your mouth to my ears.
“Slut village?” “This isn’t Slut Village?”
Whatever you said, it initially made me chuckle. Receiving catcalls and obscenities is something I’d expect in my college town. And something that did happen often while I was in college, not because of how I acted, or how I dressed, but because men are men and that’s all. Continue reading
A woman stands with an umbrella, rain steadily dripping above her head. She holds a sign: “My child, my right.” Pushing a stroller with two young ones, she makes her way closer to the front to hear the speaker.
A man in overalls steps in place to keep warm. He grins as we catch eyes. Passion emits from the microphone, and he is the first to applause. Continue reading
“You look more youthful.” The words hit me with surprise.
Here I was, gripping a beast of a camera, one on loan from a good friend. I wanted to cry with the pain its weight brought to my arthritic fingers and wrists. But instead, I beamed with happiness. A youthful sort of happiness, as my husband pointed out. Continue reading
Today, January 14th, marks the due date of the second baby my husband and I lost to miscarriage, now four and half years ago. Words fail to describe the existence of pain that still resides in my heart as a result from enduring such losses.
In remembrance of what today should have been, I’m publishing an old excerpt from my journal. Continue reading
You think it’s pretty crazy that it’s already two-thousand-and-seven, don’t you? You wish you could have accomplished more in this last year, but you’re sitting down with pen and paper, eager to write out a full list of all the amazing things you want to accomplish in the new year.
After an hour of journaling right before bed, your hand writing at awkward angles as you use your pillow for a desk, you come up with something like this.
When is the last time you cried? For me, the most recent tears came just the other night. I felt them creeping up, as my lips firmly frowned. I did not want them to take over, but they did. The wet droplets against my cheeks made me feel embarrassed, even though no one was around.
Not because I was crying, but because of what I was crying about.
You see, I was crying about Christmas cards. Continue reading
I am not the only person suffering from chronic Lyme disease. And chances are, I am not the only person you know who has it.
Have (or how have) you been touched by Lyme disease?
Perhaps you have a friend who has Lyme. Or a sibling, parent or child. Or multiple siblings or children. Perhaps you don’t know anyone personally, but have friends or relatives who do. Continue reading
I hate you, weaning. I never meant to meet you. Yet here you are. Making my child scream like he’s dying. Making my heart cringe like it’s dying too.
He wants his mama. But that’s not all, he wants mama’s milk. Just the way he always has. I have to teach him that mama can’t offer milk anymore. Mama is starting a new treatment next month and it just wouldn’t be safe. Continue reading
GoFundMe: Locked With Lyme Q&A
1. Tell me about the treatment you are undergoing: Who, what, where: when?
I will be traveling to Coeur d’Alene, ID to see Dr. Tony Smith for his LymeStop Program. I have three appointments spread over the course of almost one week (December 15-20).
Dr. Smith is an experienced healer, who specializes in chiropractics. He developed a unique way of treating Lyme using magnetic therapy. The magnets are used to trigger the body’s immune system to heal itself. Continue reading