Category Archives: Lyme

How Lyme Disease Takes A Village

Lyme disease can leave people feeling alone and abandoned.

Alone because no one understands. Even their closest friends and family members have trouble understanding.

Abandoned by the medical community.  Lyme patients are forced to pay out-of-pocket for treatment costs, and in a way, forced to become their own doctors.  Continue reading

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23 Ways to Imagine What It’s Like to Have Lyme Disease

This article was featured on The Mighty.

Dealing with Lyme Disease can be challenging enough based on the complex symptoms alone.

What makes it ten times more challenging, though, is the fact that (for most with Lyme Disease) our symptoms are invisible. Continue reading

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A New Year’s Letter to My Decade-Younger Self

Dear Self,

You think it’s pretty crazy that it’s already two-thousand-and-seven, don’t you? You wish you could have accomplished more in this last year, but you’re sitting down with pen and paper, eager to write out a full list of all the amazing things you want to accomplish in the new year.

After an hour of journaling right before bed, your hand writing at awkward angles as you use your pillow for a desk, you come up with something like this.
Continue reading

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Have You Ever Shed Tears Over Christmas Cards?

When is the last time you cried? For me, the most recent tears came just the other night. I felt them creeping up, as my lips firmly frowned. I did not want them to take over, but they did. The wet droplets against my cheeks made me feel embarrassed, even though no one was around.

Not because I was crying, but because of what I was crying about.

You see, I was crying about Christmas cards. Continue reading

Beyond Me: How Many More Will Suffer?

I am not the only person suffering from chronic Lyme disease. And chances are, I am not the only person you know who has it.

Have (or how have) you been touched by Lyme disease?

Perhaps you have a friend who has Lyme. Or a sibling, parent or child. Or multiple siblings or children. Perhaps you don’t know anyone personally, but have friends or relatives who do. Continue reading

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You Know You Have Fatigue When…

In high school French, I remember learning a lot of funny sounding words. My friend Rachel (Sylvie) and I created a list of favorite French words. At the top of my list was “raplapla,” an onomatopoeia meaning “worn out; tired; exhausted; fatigued.”

Over a decade later, I find it interesting that one of my favorite sounding French words has become the soundtrack of my life.  Continue reading

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WHAT WOULD YOU DO TO SEE YOUR LOVED ONE BETTER?

This article was featured on The Mighty.

What would you do to see your loved one better? How would you feel if you found out your wife had a serious chronic illness a few short years into married life? You’d see her in constant pain, but not be able to do anything about it.

What would you do? When you can’t afford the treatment required? When you wake up every morning to the face of someone who is ill? Continue reading

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So Let’s talk about symptoms

I have chronic Lyme disease, but I also have several Lyme co-infections and numerous other health complications because of these.

Because of the complexities of Lyme disease, and my own complex situation in particular, I tend to be rather vague when writing about my illness. There are so many topics to be covered, a vast number of subcategories within the category of Lyme disease.  Continue reading

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Change is in the air

The green tree leaves are changing to vibrant red hues. The air is crisp. (I could see my breath the other day.) As the sunny skies turn gray here in the Pacific Northwest, my mind turns to the changes ahead. With these atmospheric changes, there are changes in my health. Continue reading

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“What does Lyme feel like?” by Lori Dennis, MA,RP

I stumbled across the below post last week via a Facebook support group that I’m in (for people with Lyme disease).

I don’t read others’ Lyme stories, blogs or articles as often as I’d like – for many reasons. Why? I’m interrupted by my toddler. The pain from typing overwhelms. Or blurry vision sets in. (And the list goes on). Continue reading

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