Tag Archives: Chronic Lyme Disease

How Lyme Disease Takes A Village

Lyme disease can leave people feeling alone and abandoned.

Alone because no one understands. Even their closest friends and family members have trouble understanding.

Abandoned by the medical community.  Lyme patients are forced to pay out-of-pocket for treatment costs, and in a way, forced to become their own doctors.  Continue reading

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Never Give Up Working With Your Hands

“You look more youthful.” The words hit me with surprise. 

Here I was, gripping a beast of a camera, one on loan from a good friend. I wanted to cry with the pain its weight brought to my arthritic fingers and wrists. But instead, I beamed with happiness. A youthful sort of happiness, as my husband pointed out. Continue reading

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A New Year’s Letter to My Decade-Younger Self

Dear Self,

You think it’s pretty crazy that it’s already two-thousand-and-seven, don’t you? You wish you could have accomplished more in this last year, but you’re sitting down with pen and paper, eager to write out a full list of all the amazing things you want to accomplish in the new year.

After an hour of journaling right before bed, your hand writing at awkward angles as you use your pillow for a desk, you come up with something like this.
Continue reading

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You Know You Have Fatigue When…

In high school French, I remember learning a lot of funny sounding words. My friend Rachel (Sylvie) and I created a list of favorite French words. At the top of my list was “raplapla,” an onomatopoeia meaning “worn out; tired; exhausted; fatigued.”

Over a decade later, I find it interesting that one of my favorite sounding French words has become the soundtrack of my life.  Continue reading

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So Let’s talk about symptoms

I have chronic Lyme disease, but I also have several Lyme co-infections and numerous other health complications because of these.

Because of the complexities of Lyme disease, and my own complex situation in particular, I tend to be rather vague when writing about my illness. There are so many topics to be covered, a vast number of subcategories within the category of Lyme disease.  Continue reading

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On Turning 30

I’m feeling older than I did a year ago. My body is less forgiving of simple, basic movements –turning to check my blind spot, putting my toddler into the baby carrier, standing on my feet for more than a minute…

I find myself quoting the words of King David: “How long, O Lord…?” Continue reading

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Change is in the air

The green tree leaves are changing to vibrant red hues. The air is crisp. (I could see my breath the other day.) As the sunny skies turn gray here in the Pacific Northwest, my mind turns to the changes ahead. With these atmospheric changes, there are changes in my health. Continue reading

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“What does Lyme feel like?” by Lori Dennis, MA,RP

I stumbled across the below post last week via a Facebook support group that I’m in (for people with Lyme disease).

I don’t read others’ Lyme stories, blogs or articles as often as I’d like – for many reasons. Why? I’m interrupted by my toddler. The pain from typing overwhelms. Or blurry vision sets in. (And the list goes on). Continue reading

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Why I don’t easily Trust Doctors

A little story. Or intelligent rant, as my husband puts it.

I had my blood drawn the other day. (Lucky me.) Upon exiting, I was given the choice of using tape versus a bandage to cover the blood. Ironically, I wasn’t given the choice of needle used for the procedure.  Continue reading

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Don’t mess with the sleeping baby

Have you ever been pulled over on a five-lane interstate with a sleeping baby in the back? I haven’t… until today.

Before this unfortunate encounter, I spent an entire two hours in my car, putting my toddler to sleep and then making sure he stayed asleep. He needed it bad. Continue reading

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