Tag Archives: lyme life

How Lyme Disease Takes A Village

Lyme disease can leave people feeling alone and abandoned.

Alone because no one understands. Even their closest friends and family members have trouble understanding.

Abandoned by the medical community.  Lyme patients are forced to pay out-of-pocket for treatment costs, and in a way, forced to become their own doctors.  Continue reading

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Beyond Me: How Many More Will Suffer?

I am not the only person suffering from chronic Lyme disease. And chances are, I am not the only person you know who has it.

Have (or how have) you been touched by Lyme disease?

Perhaps you have a friend who has Lyme. Or a sibling, parent or child. Or multiple siblings or children. Perhaps you don’t know anyone personally, but have friends or relatives who do. Continue reading

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I Hate You, Weaning

I hate you, weaning. I never meant to meet you. Yet here you are. Making my child scream like he’s dying. Making my heart cringe like it’s dying too.

He wants his mama. But that’s not all, he wants mama’s milk. Just the way he always has. I have to teach him that mama can’t offer milk anymore. Mama is starting a new treatment next month and it just wouldn’t be safe. Continue reading

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You Know You Have Fatigue When…

In high school French, I remember learning a lot of funny sounding words. My friend Rachel (Sylvie) and I created a list of favorite French words. At the top of my list was “raplapla,” an onomatopoeia meaning “worn out; tired; exhausted; fatigued.”

Over a decade later, I find it interesting that one of my favorite sounding French words has become the soundtrack of my life.  Continue reading

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So Let’s talk about symptoms

I have chronic Lyme disease, but I also have several Lyme co-infections and numerous other health complications because of these.

Because of the complexities of Lyme disease, and my own complex situation in particular, I tend to be rather vague when writing about my illness. There are so many topics to be covered, a vast number of subcategories within the category of Lyme disease.  Continue reading

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Change is in the air

The green tree leaves are changing to vibrant red hues. The air is crisp. (I could see my breath the other day.) As the sunny skies turn gray here in the Pacific Northwest, my mind turns to the changes ahead. With these atmospheric changes, there are changes in my health. Continue reading

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