Tag Archives: spoonie

23 Ways to Imagine What It’s Like to Have Lyme Disease

This article was featured on The Mighty.

Dealing with Lyme Disease can be challenging enough based on the complex symptoms alone.

What makes it ten times more challenging, though, is the fact that (for most with Lyme Disease) our symptoms are invisible. Continue reading

Advertisements
Tagged , , , , , , , , , , , , , ,

To the Passenger who Called Me A Slut

I don’t even know what you said in full, the wind disrupted the sound waves as your words were on their way from your mouth to my ears.

“Slut village?” “This isn’t Slut Village?”

Whatever you said, it initially made me chuckle. Receiving catcalls and obscenities is something I’d expect in my college town. And something that did happen often while I was in college, not because of how I acted, or how I dressed, but because men are men and that’s all. Continue reading

Tagged , , , , , , , , , , , , , , , , , , , , , , , , ,

Beyond Me: How Many More Will Suffer?

I am not the only person suffering from chronic Lyme disease. And chances are, I am not the only person you know who has it.

Have (or how have) you been touched by Lyme disease?

Perhaps you have a friend who has Lyme. Or a sibling, parent or child. Or multiple siblings or children. Perhaps you don’t know anyone personally, but have friends or relatives who do. Continue reading

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

I Hate You, Weaning

I hate you, weaning. I never meant to meet you. Yet here you are. Making my child scream like he’s dying. Making my heart cringe like it’s dying too.

He wants his mama. But that’s not all, he wants mama’s milk. Just the way he always has. I have to teach him that mama can’t offer milk anymore. Mama is starting a new treatment next month and it just wouldn’t be safe. Continue reading

Tagged , , , , , , , , , , , , , , , , , , , , , ,

You Know You Have Fatigue When…

In high school French, I remember learning a lot of funny sounding words. My friend Rachel (Sylvie) and I created a list of favorite French words. At the top of my list was “raplapla,” an onomatopoeia meaning “worn out; tired; exhausted; fatigued.”

Over a decade later, I find it interesting that one of my favorite sounding French words has become the soundtrack of my life.  Continue reading

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

So Let’s talk about symptoms

I have chronic Lyme disease, but I also have several Lyme co-infections and numerous other health complications because of these.

Because of the complexities of Lyme disease, and my own complex situation in particular, I tend to be rather vague when writing about my illness. There are so many topics to be covered, a vast number of subcategories within the category of Lyme disease.  Continue reading

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,